I took Mom to consult with the Neuro Surgeon and, not surprisingly, he recommended that she have another Spinal Tap called a "large volume lumbar puncture" before proceeding with shunt surgery.
This test will remove approx. 40mL of spinal fluid (a bunch), which will hopefully result in near immediate symptom relief. The Doctor stated that she should show the most improvement during the first day or two following the procedure; therefore, we will spend a lot of time together over that period so I can observe her actions. We will then meet with the Surgeon again to review the results of this test and determine if he will proceed with the shunt surgery.
Mom expressed extreme fear and concern about the surgery and the Doctor spoke with her to attempt to alleviate her fears, describing the surgery in fair detail. She seemed moderately pacified, but I suspect she will forget his explanation and her fears will increase again. Upon leaving the appointment, she said "That's the most I've ever had explained about what's going on with me"; which is not true, her Neurologist and myself have explained on numerous occasions what is happening, what to expect and viewed her MRI pictures vs those of someone without NPH. Sadly, she forgets these conversations.
She does seem appreciative that I am taking care of her, and ensuring that she is getting the treatment she needs. But, she doesn't like the treatment that is being recommended. While no one looks forward to brain surgery, the potential to regain increased quality of life is worth the risks, because without the surgery her prognosis is grim.
I am looking forward to scheduling this test as soon as possible since she becomes more fragile by the day. Here's hoping the next update will hold good news about the outcome of the "large volume lumbar puncture" test.
2 comments:
Wow, what a tough road you and your mother have been on. I did know you were having some concerns, but didn't realize just how proactive you were being. That is AWESOME. My brother & I tried to be proactive, but Mom really wanted no part of any tests that involved needles, etc. I have to wonder if she had the same problem with the spinal fluid - because it sounds so familiar. Alas, she was happy to drift off into la-la-land and we were along for the ride.
You are in my prayers. Being a caregiver is HARD, both physically and emotionally. It sounds like venting might be necessary at times - and I'm willing to listen to the bitchin.
Oh, Dez...hang in there! It sounds like you're doing the best you can by your mom and I applaud you for that. Let me know if I can help.
-jedi
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